Clinical Registry Services for Cystic Fibrosis

To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub. To provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following: • Compliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on. • That Authority will make every effor...